Happy Update on Liz Ford's Son

Liz Ford

In February, after numerous chemo treatments and two failed tandem stem cell transplants, Arlo's oncologist told him he was running out of options.  The only things left to try was a donor stem cell transplant, which has a 20% success rate and horrible side effects or maintenance chemo to just keep him alive.  At this point the cancer had already spread to his lungs, bones, lymph nodes and neck.  His prognosis was grim.

I pushed for Arlo to try a newly approved drug.  It is actually consider immuno-therapy because the drug is attached to an antigen that connects to a protein notch right on the surface of the cancer cell.  This drug (SGN-35) was approved in August, so now Arlo can get his infusion not only in Salt Lake City, but also in Moab.  We knew the drug was working because his pain started abating and he began to have more energy.  He is scheduled to be on it for a year, but his PET scan "shows no metabolically active disease" after just 3 months!

Thanks to everyone for all the prayers, good thoughts, help with fund raising, and all the emotional support!

The Bent Fork Chronicles - Vol 5 Issue 3, 1 June 2012

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